Through collaborative efforts and diverse perspectives, we aim to create a space where individuals affected by rare diseases, their families, researchers, and the general public can come together.

Join us in fostering inclusivity, sharing knowledge, and learning from the unique experiences that contribute to a stronger, more supportive rare disease community. Together, we can make a meaningful impact on the lives of those facing rare diseases.

Our Sponsor

We extend our deep appreciation to the Spastic Paraplegia Foundation for their generous support of the Spastic Paraplegia – Centers of Excellence Research Network. Through their sponsorship, we are able to provide essential resources for patients, furthering our mission to advance research and enhance the lives of individuals affected by spastic paraplegia. We are truly grateful for their commitment and dedication.

SPG4, SPG5A, & PLS Resources